Epilepsy Stories

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Torie shares her story for #EpilepsyDay

12th February is International Epilepsy Day. What does that mean you might ask? Well, to me it’s a clear opportunity for all those affected by – and indeed so far not affected by – epilepsy; to learn about the condition. To chat and educate regarding overactive brains!  So many people, including many of those already

February 12th, 2018|

Paula Moreno, from Bogotá, shares a motivating video

Although I have had seizures since I was 12 and they made me feel weak and helpless, when I grew I discovered that life is more than seizures, bullying, doctors and medicines, and slowly I began to make my own life. Nowadays I work as a teacher. I have traveled to many places

February 2nd, 2018|

‘Always live each day bright and happy’ – Jenifer’s Story

Always live each day bright and happy. My name is Jenifer Ann and I live in Perth, Western Australia. I was diagnosed with epilepsy when I was ten years old, my family had no understanding of what epilepsy was and I had no idea what was happening to my body. I have always had a

January 21st, 2018|

People see my bright side but never the dark side

Life is beautiful with my epilepsy- every night and every new day after: severe and bright and happy and hilarious! People see my bright side but never the dark side- the impact of not sleeping, the work of washing bedclothes, of not having a fresh brain in the morning. The silence of epilepsy and the

January 19th, 2018|

Ryan’s story

In May of 2016, our son Ryan, had his very first seizure. We were driving at the time to visit his Grandpa’s graveside because it was my birthday and this was a family tradition. We pulled up in the midst of a busy 4 lane road and flagged down help the minute we saw him

January 8th, 2018|

Logan’s Story

Logan is 11 and truly a “super hero” for facing the challenges that epilepsy and autism has brought him! He has a VNS, had 2 laser ablation brain surgeries and is diagnosed with intractable epilepsy and autism. Even though his parents constantly worry and see the hard times he goes through of being in and

January 2nd, 2018|

Lara’s Story

Lara began life as a beautiful, happy child, reaching all of her milestones very early. Her eyes were bright and she would light up a room with her presence. There was something special about her. Lara experienced her first seizure at the age of two, at the beginning of our first family holiday. Exhausted from

January 2nd, 2018|

Chloé Grayson’s story – My Mother’s Epilepsy

My mother’s epilepsy went undetected for 24 years. It wasn’t until she had a violent seizure in front of other people that it was officially confirmed. Upon reflection, she realised that it explained a lot of things that she had been experiencing throughout her whole life. The first time it was suspected by a medical

December 8th, 2017|

Juha Karjula – Living real dreams despite epilepsy

Juha Karjula, a 38 year-old kindergarten teacher, obtained his university Master’s degree despite having refractory epilepsy. He had a tonic-clonic seizure when he was a high school student. The diagnosis was given quite soon after the seizure, however the cause of his epilepsy is still unknown. The first antiepileptic drug did not stop his seizures,

February 6th, 2017|